Rachael Manion - Executive Director
Rachael came to the CSPA and CAPP after serving as a consultant with a public affairs firm where she supported clients in the health and life sciences sectors, including national patient organizations, to navigate the ever-changing policy, political and regulatory landscape. She appreciates the challenges facing patients when accessing treatments and brings a strategic and creative approach to advocating for better patient care.
A lawyer by background, Rachael has advised Health Canada on the regulation of health technologies, novel therapies and science policy. She has consistently supported the not-for-profit sector throughout her career, professionally and as a volunteer board member. She has worked on the front lines of healthcare in a community health centre for the street-entrenched population and in a pharmacy. She has a law degree from the University of British Columbia and an honours degree in mathematics from Dalhousie University.
Rachael is excited to be joining the patient advocacy and support community at a time when policymakers are actively recognizing its perspectives and expertise. She is looking forward to strengthening the psoriasis and psoriatic arthritis skin patient communities and working with patients, policy makers, clinicians and researchers to bring us closer to a cure.
Helen Crawford - Communications Manager
Helen has worked for the Canadian Association of Psoriasis Patients (CAPP) since its inception and also works for the Canadian Skin Patient Alliance. She is responsible for all the communications for both organizations, including social media, websites and newsletters. Helen has a degree in Linguistics from Carleton University and a Certificate in Social Media from Algonquin College. She is proud to represent CAPP as the Canadian member organization of the International Federation of Psoriasis Associations.
In her free time she is an active community volunteer and the proud mother of two young men.
You can contact Helen by email at firstname.lastname@example.org.